What would taking part involve?
If you decide to take part in this study after reading this information sheet and the consent page (next page), this study involves completing an anonymous online survey in your own time. This can be accessed after the consent page. The survey will consist of responding to a set of questionnaires with closed-ended statements describing a variety of subjective experiences. Please note that some questionnaire items will appear twice – this is not a mistake. There is no right or wrong way of responding to the statements - simply select the response which is most true for you.
What are the possible disadvantages and risks of taking part?
This study has been designed to minimise the burden placed on your time. However, completing the survey will take time (approximately 30 minutes) and may lead to fatigue. You can stop at any time, without having to give a reason. You can also talk to us, a colleague, or an independent person if you have any concerns about this project. To minimise risk, this survey is completed anonymously and does not ask for any information of a sensitive nature.
What are the benefits of taking part?
Data gathered from this survey will inform the development of a new questionnaire measure of compassion. Developing a robust compassion measure is crucial to improving our understanding of the construct and advancing research in this field. Our hope is that the resulting measure can be used in many contexts, for example, in healthcare contexts for the benefit of staff and service users.
If you are considering participating based on the information given in Part 1, please read the additional information in Part 2.
What will happen if I don’t want to carry on with the study?
Should you agree to participate you can withdraw your consent at any time without giving a reason and exit the study by closing the browser window. Your incomplete responses will not be recorded. Please make a note of the exact time and date you complete the survey should you later wish to email the research lead to remove your data (firstname.lastname@example.org).
What happens if there is a problem?
If you have a complaint about participating in this study, firstly speak to the researcher leading this study, Jenny Gu (email@example.com) or the study supervisors, Clara Strauss (firstname.lastname@example.org) and Kate Cavanagh (email@example.com). You can ask to speak to the Research Governance Officer at the University of Sussex, Antony Walsh (01273 872 748 or firstname.lastname@example.org). If you remain unhappy, you can make a complaint through the Surrey and Borders Partnership NHS Foundation Trust Patient Advice and Liaison Service (PALS; 01372 216 202/203/204 or email@example.com). In the unlikely event that something goes wrong and you are harmed during the research, the University of Sussex has insurance in place to cover their legal liabilities in the event of injury or damage to the research participants arising from this study. If you experience any distress, you can contact your GP or Mind (08457909090; www.mind.org.uk) for information, advice, and support.
Will my taking part in the study be kept confidential?
All data collected will be anonymous, as we do not ask for any personally identifying information. Data will be stored securely in line with ethical and legal practice and no identifiable data will be published.
What will happen to the results of the research study?
The results of the study will contribute to a PhD thesis and may be subject to publication in a scientific journal. No data that may allow identification of an individual will be published. Anonymised data may also be shared with collaborators of the research team, for the purpose of answering additional research questions. If you would like a copy of the write-up, please e-mail Jenny Gu (firstname.lastname@example.org).
Who is organising and funding this study?
The study is being organised and part-funded by Sussex Partnership NHS Foundation Trust and the University of Sussex. The Economic and Social Research Council have also provided funding.
Who has reviewed the study?
This study has been approved by the Sciences & Technology Cross-Schools Research Ethics Committee of the University of Sussex (email@example.com; project reference number is ER/JG252/11) and the NHS Health Research Authority. This indicates that there are no substantial risks or disadvantages associated with taking part in this study.
Further information and contact details
If you have any questions or concerns about the study, please email Jenny Gu (firstname.lastname@example.org). Alternatively, you can contact the study supervisors, Clara Strauss (email@example.com) and Kate Cavanagh (firstname.lastname@example.org).
Thank you for taking the time to read this information page. Please click on the ‘>>’ button below to view the Consent Page and begin the survey.